Laura’s Personal Story
Laura has a condition called ankylosing spondylitis.
“I’m 34 years old, and live in Sydney with my husband Tim and our kids (Caleb, 4 and Tabitha, 2). I first realised something was really wrong with me when I developed ankle pain in May last year. After seeing a physio for a few weeks, it was getting worse rather than better. I was eventually diagnosed in October with arthritis – different doctors refer to it as “spondyloarthritis”, “ankylosing spondylitis” or “seronegative arthritis”. It’s inflammatory, it’s auto-immune, and it’s painful. In hindsight, I’ve realised that a number of problems I’ve had over the years were probably related (knee pain, neck/back problems, and RSI in my wrist).
We don’t own a car and rely on public transport and walking to get everywhere. For almost six months last year, I was in considerable pain due to severe inflammation in my foot, and we were very limited in what we could do. It was very difficult to care for my children, which was upsetting and frustrating. We tried to find activities close to home or public transport that were interesting and manageable, but it feels like I really missed a lot of quality time with my kids.
I’m thankful that I had my wonderful and very hands-on husband to take care of the kids, but also to take care of me. I felt helpless, not being able to stand and walk and help with housework or children, but whenever I got upset about this, my husband was very supportive in reassuring me that it is okay for me to rest. I also had my colleagues at work offer to perform the more walking-intensive parts of my job for me (even the pregnant woman helped out!).
I’ve been on methotrexate for about a year now, which is causing fatigue and some other side-effects, but overall it has vastly improved my quality of life. I am able to walk much more comfortably which is a huge relief. I’ve been attending the Arthritis NSW warm water exercise classes all year, and am finding this is really helpful for decreasing pain. Being diagnosed with arthritis has made me keen to enjoy life while we can, and earlier this year we enjoyed a family trip to NYC, which was an amazing experience, and because I got so much exercise from walking around all day, I was even pain-free!”
Thank you to Laura for sharing her story.
Disclaimer
The views and experiences shared in this post are those of the individual and may not reflect the views or experiences of The Arthritis Movement. This is not intended as medical advice. Always consult your healthcare team before changing or starting new healthcare management strategies. While all reasonable care has been taken to ensure the accuracy of information in this story, no warranties or guarantees are given, nor is any responsibility accepted by the publishers, its agents or anyone else involved in its production for any errors which may occur.
